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Donica

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@Maddie! Thought I would check in with you. How is your recovery going? I hope all is well.

Hugs!
Donica
 

Maddie

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Hi Donica!
I’m doing okayee

Working through issues of pain/loss of depth dilating now. I’ve got mid body swelling and numbness.

On the plus side, the overall pain from my recent surgery has receded significantly😊.

AND… I can lay down on my back and sides now!!! 🌈🌈
 

Maddie

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Feb 9, 2020
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763
“ZERO TO 60”

Surgery updates:

-Still massaging 45 min day to reduce the swelling I still have from last January FFS and BA. Improvement has been slow and setback by the additional surgeries and high volume electrolysis done this year since.
Overall results are good and I am happy and hopeful.

-dilating 30min 2x/day. This has become more and more difficult. I missed a few days of full dilations in August when I had another surgery, and I lost major depth and girth. Before that operation, there was already pain and some loss of depth and girth starting July (4 months post March peritoneal vaginoplasty) . But that loss was nothing like what has happened since. It’s scary how much I lost so fast.
It is not coming back easy.. Sometimes it feels like I’m not making progress back at all. My surgeon says that there is a chance I can get it back if I work very hard for a long time. There is significant pain on one side of the pelvic floor suture line. This issue is not being addressed no matter how many times I bring it up. My HRT Dr is an OBGYN and she is also hopeful that there is still enough to work with that I might get it back.
On the plus side of GCS, I am able to have orgasms, starting around six months post op.

- Im now six weeks post hip&butt augmentation, with lipo. Still plenty of numbness. Discomfort is lessened considerably. But compared to my March GCS, I’m noticeable weaker and in more pain from this op! My mobility is more affected. And I’m concerned about returning to my physical/long shift job.

Back in spring, I was chomping at the bit to get back working after GCS I felt great-and it was still an adjustment.
Now I’m a little worried!
On the plus side of this, I am happier with my shape, and clothes fit (or don’t fit!). in ways more like I always wanted them to
😊


The insurance through my work has made medical transition possible this year!!!
Before I had it, it was all I could do to put $25k towards transitioning over 5 years. At that rate, I’’d be transitioned, with my ops, by 2033…

But along with the blessing, the nature of my job makes it difficult to recover.

My leave of absence from last surgery is ending and I return to work this next week. And our warehouse has suddenly announced mandatory overtime (60hours/week) effective immediately.

Our building runs on mandatory OT more than half the year, usually with last-minute notice. Because it’s last minute, there’s no time to reach out to my Drs (and then my corporate disability & leave dept) to extend leave or get medical accommodation in time for return to work.

This means six workdays and one day to do everything else, plus all my appts.

PROBLEM: I am having to cancel my pelvic floor therapist appts because she is not available on what is now my only day off. It was her that suggested I I not schedule appointments on workdays to prioritize sleep and dilation. (She has repeatedly stated concerns about the condition my bottom is in resulting from squatting and lifting for my long work shifts.)
With my current pelvic floor situation, I’m feeling I’m being cut off from help that I could really use right now.
But sleep and dilations are the priorities!

it’s been nice having some time off to play a little music. Sadly, the guitars will be going back in their cases for a while..

I chose to walk this path.
I am strong and resilient.
I will follow through
i am happy and alive
🌈
🌈
E8B9FA61-CB26-4CD9-9EF7-9D0ADC0F8C03.jpeg
 

Donica

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I hope it all works out for you Maddie! It is tough juggling everything and finding time for everyone. But most importantly, make time for yourself first.

Hugs!
Donica
 

Monica

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You look great! One day you will look back at this year and say, "What was I thinking?" Nah, you will probably remember how tough it was but you will be overjoyed with the fact of what you have adjusted in your life. Congratulations! I know where you work is really demanding. Like you say, you are strong. But like Donica said, try to take care of yourself too. Hugs
Moni
 
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