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OzGirl

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Maddie, congratulations on your succesfu bottom surgery, and good to hear you are up and about! I will be interested to hear your reaction when you see your new lady parts! Wishing you a smooth and rapid recovery, the first month is the hardest, but it seems to progress after that! I’m not forgetting your recent FFS, which you are still recovering from, how are you coping?

Hugs,

Allie
 

Maddie

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I’m doing ok. Definitely still swollen from, and dealing with the FFS and BA. Doing my best to stay on top of those massage and cleaning routines while here in the hospital.

My lady parts surgeon says I will have the packing removed and trained to dialate this Sunday or Monday. I suppose that’s when it begins…

everyone says I’ve done excellent so far through all this. that is so encouraging to hear. 🌈🌈
 

OzGirl

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Maddie, I will admit that I was worried when I saw how much surgery you were taking on, it would be hard on anyone! But you have been an excellent patient, and apparently sailed through this challenge to achive your dreams in but a couple of months! You have been inspirational in the way you have coped with the surgeries and the morons at your insurance company, and I am now confident of your recovery and happiness!

Hugs,

Allie
 

Maddie

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my surgeon:
‘you can ask for diladid or OxyCotin it’s in my orders”

nurse:
”no I can’t give you even the oxy unless the Dr schedules it”

Other Dr I never met wakes me up: “we never schedule narcotics”
Me, barely open my eyes yet: “but my surgeon said…”
Other Dr: “I’m a doctor, and if you’re going to be this way I won’t help you”
(turns and storms out)

Hanging on.
Grateful to be on this side

So glad there’s only a couple more days of hospital.

A lot of the experiences here postop have totally validated my fear behind my three year delay to starting medical transition.

Distrust large healthcare institutions.

Wish that advocating for yourself or your loved ones wouldn’t instantly categorize you/them as problem patients to the staff. I’m usually just trying to advocate for the surgeons own instructions, but these can require people to do things beyond their own inner workday timeframe.

What sucks is that, as trans people, when we say things, it can trigger a lot in others and represent our group in a negative way.

but the alternative is to be a doormat.
would that be better?

how do I know? I’m just a postop patient trying to follow my surgeons directions.

I will take on as much of my own care, as their system will allow.
 

Donica

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That really sucks Maddie. I would be all over filing grievances on that doctor. If they refuse care because we're trans, then they have no business in their profession. They will be costing the hospital money and lost revenue. Hang in there Maddie. Hope you make it home soon.

Warm hugs hun!
Donica
 

Maddie

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My impression is that of unnacountable drones, and an over-educated terf child….

….but that could just be the catheter talking ;)

My surgeons been good. What he orders makes sense. But I don’t really want to take strong pain meds anyway!!

Soon I’ll be out of here.
I won’t play an uppity trans person for their use

🌈🌈
 

Monica

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Sounds like you are being classy among a few idiots. I admire that. I hated the narcotics because they made me nauseous. I preferred some pain to getting sick. Hope you feel better soon.
 

Michelle_P

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Medical care can be really rough, especially in a hospital. Some doctors treat ALL patients the way you were treated, assuming they as doctors are Lord of the Universe and mere patients are ignorant petulant children.

‘They respond poorly to anything less than absolute agreement and fawning, very annoying!

But soon, your doctor will be there to perform the Magic Scarf Trick as they pull yards of packing out, and then you’ll have a whole new source of distractions! With any luck, the catheter will be out and you’ll be ready to leave there soon.
 

Maddie

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Turns out the Dr I thought was mad at me, was actually way more mad at the nurses here. She went at them, and since then, I’ve never been treated better in my life!!!!

Packing is out
Started dialating this afternoon.

Plan is catheter out tomorrow morning, and released from hospital in the afternoon. Ride is lined up😊🌈🌈
 

Lexxi

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Congrats Maddie!!! You beat me to surgery. Mine is going to be on May 14th. I hope mine goes as well as yours. Hope you continue healing well.
 

Monica

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Fan-freakin-tastic Maddie! Love to hear it going well.
 

Donica

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Turns out the Dr I thought was mad at me, was actually way more mad at the nurses here. She went at them, and since then, I’ve never been treated better in my life!!!!

Packing is out
Started dialating this afternoon.

Plan is catheter out tomorrow morning, and released from hospital in the afternoon. Ride is lined up😊🌈🌈
Outstanding news Maddie! Both the doctor not being mad at you, and that... well you're probably already home by now. Great to hear hun!
 

Maddie

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PERITONEAL VAGINOPLASTY Update

03/07/2022 surgery

Indiana University Hospital
Drs Roth and Koch

Consult was Feb 2021. Could have scheduled surgery sooner, but delays due to my job and covid.

FYI this surgeon and hospital accept Medicare, although in my case the surgery was covered by my work insurance (Premera Blue cross Amazon). The bill was over $150k. I I paid 0 of that amount, having already reached my out of pocket maximum for the plan year prior to surgery date. I paid small copays for meds and of course travel expenses and supplies.

8 days in hospital. Nurses and caregivers in recovery unit were not really familiar with this procedure. There were times when they would not follow the surgeons’ postop care instructions and this caused a problem between the depts. I had a couple rough times but survived.

pain mgnt:
Had an epidural for 48hrs after which I was on Tylenol and oxycodin. By 2nd week on, Tylenol and ibuprofen only.

Started walking day two. With a caregiver, though later found out she wasn’t supposed to have me do that yet. But it was fine. I walked several times per day, which passed the time and convinced them I was doing good.

recovered five weeks at a friends house in IN, then drove home for a week before resuming work.

I had been approved for s 7 week leave of absence, but after my 30 day post op appt, my restrictions were all lifted, so I managed to go back a week early.

Was not cleared to drive until 30 day follow up, though I have a feeling this strict rule might have changed by now, barring narc meds.

Had to keep my legs together should width or less, and not lift over 10lbs. In my case these restrictions were lifted at 30 day followup.

catheter for 8 days. I believe that tugging of the catheter affected the shape and appearance of my urethra.
started dialating day 7. Was given a set of four dialator, which included two child sizes which I never used. Started day one with all five dots on the adult #1 purple Soul Source dialator. Surgeon told me to move up in size as quickly as possible. Until leg/spread restriction was lifted, I dilated on my back with my legs spread butterfly, with feet together.

Dialating is 30 min, twice per day, for the first year. After which twice per week for 30 min, barring no obstacles.

i went up a size every two weeks or do. I ordered the next two sizes up from Soul Soutce. Now I dialate green or orange (adult #3 and 4), depending how tight I am. Usually just up to the last dot.

flush vagina daily at first, after a while I’ve backed off to like every other day.

Wear pads every day, but starting to get less and less need for it. Surgeon says 3 months until this passes, but I’ve read online as much as 9 months to have this interesting discharge out of new peritoneal vagina.

life is weird.

bowel movements were challenging for six weeks, even using stool softeners and laxatives. It got back to normal once I resumed my physical job and was moving a lot.

urinating is slow and dribbly still. Was checked out at 30 day followup and told there was no obstructions, just swelling which can take a very very long time to go away in this part of the body.

Vaginal scars are healing very good at this point, except for one spot at the top of the right side, which is a little swollen and noticeable still.

with this peritoneal procedure there were 4 small abdominal scars which are healing well.

was referred to a physical therapist for my vagina at a womens center. Weekly stretching and massage sessions for 10-12 weeks.

my clitoris is a little “hard” at this point. Up until recently I was afraid to touch or massage it. Now that I’ve started, am hopeful to soften and see improvement.
also told by care team that this is due to swelling which will go away in time.

next followup Is in person and three months after the 30 day followup, which puts it 4 months after the procedure (in my case early July)

Thanks for reading. Hope it helps.

Apologies if my writing not clear, but I have so little free time these days.

im also still recovering from extensive Facisl feminization surgery and breast augmentation which I had in January, will update these too at some point.
bless you and the world in need
 

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OzGirl

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Thank you for your update, Maddie, and please keep them coming, as they are helpful to others!

Hugs,

Allie
 

Monica

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So glad you are doing well Maddie. You really have done a lot in a short period of time. Sick of recovering yet? Hugs!
 
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